04/19/2024
Part 1...... I'm going to ramble for a bit, read it if you would like or keep scrolling. Multiple topics that are free-floating in my mind tonight.
Disclaimer..... these are my opinions, and I am fine with you disagreeing with them as I quite possibly disagree with your opinions as well.
As many of you know if you have been following for any length of time, my wife was diagnosed with a rare autoimmune disease called myasthenia gravis in 2017. Since then, life has been a roller coaster, ups and down, but in no way do I feel like we have a bad life. About 2 and a half years ago I decided that I would like to make my truck into an "awareness vehicle" for Myasthenia Gravis. This journey has been its own roller coaster fraught with its own challenges. Trying to build a truck while we pay for medical and normal bills has proven challenging, frustrating at times. It seems like every time I get close to being able to buy the next part, something happens and it gets further and further delayed. My priority is not the truck let that be clear, providing for my family is foremost in my mind. I'm just frustrated from the fact that my dream feels hopeless sometimes. The backlash that I have gotten from the MG community for my dream is also a source of frustration, numerous hate mail outweighs the support I have received. I've been asked to do articles about my project, but after talking to the writers each one has been sh*tcanned due to some lady who did a similar project and stole a bunch of money from patients and used it for herself. I understand the outlook of the community and don't want to take anything from a patient as I know the struggle that comes with the disease. I reach out to companies about sponsorship and get some bu****it about followers, algorithms, and the "outdated vehicle". What happened to helping our fellow man? What happened to raising awareness for a just cause? All this generation cares about are naked bodies on a screen, an unobtainable connection to a picture or video on a phone or computer. We spend hours a day scrolling social media searching for that rush, that connection.... I'm tired of the way people think these days.....
