03/30/2022
The long exhausting process of being diagnosed with a rare auto immune disease.
Never in my wildest dreams could I ever have imagined I would be locked into an endless struggle with something I (and most people in general) didn't even know existed. It wasn't some out of left field instantaneous catastrophic event. It was a slow creep over a ten-year period of health issues that started small but continued to worsen. Every Dr. I see has a different diagnosis and method of treatment some are quite invasive with harsh pharmaceuticals and surgical procedures none of them work some were never required and others caused damage or made things worse. Throughout all this constantly questioned my own sanity as some medical professionals tell me it's all in my head leading me to just stop seeking help for periods of time assuming my only options are to find ways to deal with it. Eventually, you cross enough things off the list allowing for new insight into what is left via what feels like an unnecessary, excessively long, painful, life-altering process of elimination and you receive a simple blood test that has a very conclusive result with only one possible diagnosis. Finally, an answer and legitimacy to all my suffering is one of the greatest feelings to experience only to be directly followed by the hopelessness felt by the words " incurable disease" disease. The highest high to lowest low in the shortest time span I've ever felt in my life. it has taken me the last 4 years to finally find ways to start accepting and dealing with just the mental impact of having to cross off so many hopes dreams and experiences from those plans I had for my future some since I was a child that may or may not have come to fruition but now no longer can even hypothetically can. This has been an extremely hard pill to swallow for an overly optimistic ever hopeful problem solver with grand illusions and big dreams.
More of my life story to come to help fill in the blanks and answer the questions some might have as to the reasons for and what lead to this fundraiser.
I thank you all for your time, understanding, empathy, and donations. I wish you all the very best in life. Have a wonderful day.
