07/13/2019
Status...
I've been diagnosed with something called Amyloidosis. It's rare and there is no cure. My bone marrow is producing too much of a protein called amyloid. The excess protein attacks internal organs and nervous system, eventually destroying them.
At this point I have massive fluid build up because my liver is being attacked. Every Wednesday I get, on average, 3 liters of fluid drained off my abdomen..
I'm loosing feeling in my hands. My feet feel like they're on fire most of the time and all my muscles are shrinking away as the disease progresses. I have zero energy and struggle just to get around the house most days.
The doctors want to start chemo next. They say the chemo may slow the process down by killing of the blood platelets that are causing the excess amyloid protein. This will involve going once a week for the next 6 months for treatment. It's a temporary fix if it even works at all..
Long story short, I'm in pretty sad shape and the future doesn't look promising.
So there it is.I'm doing the best I can under the circumstances.